Barbara’s smile brings a colourful, optimistic flair to the Greek Solidarity Association. As an elected member of the Board of Directors and a Communications, Fundraising Officer, she represents patients suffering from Lysosomal storage diseases.
Born in Tunisia and raised In Athens, she studied International, European Studies in Panteion University. She acquired a strong, versatile professional experience in Communications (EY, the European Commission), a valuable asset which helps her raise awareness on rare diseases as an MPS patient and advocate, inspirational speaker, writer and finally a certified Therapeutic Pilates Instructor.
Her early passion to create distinguished artworks, lead her to organise personal art exhibitions and prove that Art is a powerful, healing medium. Her work highlights the importance of creative empowerment and gives people opportunities to communicate the emotional and cultural impacts of living with a rare disease.
Keen to use unique opportunities like START, Barbara aims to enhance her international project management competencies in the sociocultural field. In Greece, she will utilize this experience to form her vision called Rare Art Agency Project - RAAP. Sounds like she will “RAAP” her way through, empower and give a “strong voice” to artists living with a rare condition. Stay tuned!